My name is Evelyn. I am three years old. I am stubborn, “spirited”, and funny. My idea of a perfect evening is curling up with a good board book, some goldfish crackers and a nice vintage juice. I enjoy the company of stuffed monkeys, the intelligent drama of “Signing Time,” and the musical styling of The Laurie Berkner Band. My hobbies include dancing, playing dress up, coloring on anything but paper, and throwing anything that is not a ball. Just for fun, I talk in a voice that sounds like Linda Blair in the The Exorcist. I excel at annoying my brother, tormenting my sister, and sticking both fingers up my nose at the same time in the car and saying “Mama – Look!” – because I know she is driving and there is nothing she can do about it.
I am adorably and alarmingly audacious. I stack books on boxes on small chairs on coffee tables and try to convince people it’s a good idea for me to climb up there. I jump into the bathtub like it’s an Olympic swimming pool. I dance in public – I don’t care who is watching! I once rode solo in a shopping cart across the Lowe’s parking lot and I love taking off on my own to explore large, crowded public spaces.
Like most three year olds, I think I am the center of the universe. So many people love me, and I’m pretty sure their role in life is to orbit around me and fulfill my every need and desire. They have been caught in my gravitational pull since the universe was created, and will stay that way as long as I exist. I make the rules in this universe – I think that if I cover my face, you can’t see me because I am a really good hider. And like most three year olds, I like to do things my way. On my first day of school, I refused to stand up and have my picture taken, I don’t like when my foods touch each other, and I am way too cool to hold my mom’s hand.
Also like other three year olds, I am not a “little angel” – I am a unique person with complex thoughts and emotions. Please, don’t take away my individuality by assigning me a personality based on my chromosomal make up. Saying that children with Down syndrome are sweet and loving all the time is equivalent to saying Asians are good at math, Jewish people are great with money, or African-Americans are good at sports. Just because the trait that is assigned is not negative doesn’t mean it is true and it doesn’t mean it is okay to define a person based on just one aspect of who they are. Yes, I am fearlessly friendly and I give the best hugs – when I feel like it. But I will also unroll the toilet paper or shred an entire box of tissues, given the opportunity. Because that’s who I am – I am three years old!
In honor of World Down Syndrome Day, please watch this video from the International Down Syndrome Coalition to meet a lot of other people and allow them to tell you who they are. They are not three years old (mostly), and they are all different. I know you will watch it – because I make the rules in this universe.