I Step Up Because A Life With Down Syndrome Is a Life Worth Living


“God only gives special children to special people.” “We are never given more than we can handle.” It’s meant to be comforting, but it feels like people are saying, “You should be held to a higher standard, you should bear more than others, this happened to you because you deserve it.”

When it looked like we might lose the baby, my doctor suggested non-invasive prenatal testing to determine a cause and any possible treatments.  While we waited for the results of our prenatal testing, I searched the internet for information about the possible results, especially Down syndrome. I read about heart defects, special education battles, necessary therapies that are not covered by insurance, blatant discrimination. There were videos and memes mocking people with Down syndrome. A woman commented on a message board that her twin brother had Down syndrome and had been institutionalized his entire life – she said she…

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